Good afternoon everyone

Hello from Saudi Arabia - John & Gillian

Welcome, everyone! Thank you for joining us today. Please do keep on mute throughout, and enter any questions here in the chat box

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Are you looking at Parkinson's dementia

Can I ask, have any of the PD professionals felt a financial impact on their research funding due to COVID being a priority?

Has anyone used the android "Be" meditation app?

When the trials (testing )will start ?

Is it expected that the app will provide immediate, short term benefits (eg use for five minutes & then feel a benefit for one hour), or a steady day on day slow improvement?

When is the project starting.

are the participants all based in Glasgow Scotland or do you want people in London too?

This is a good idea in theory but mindfulness is inextricably linked to meditation which requires one to be still, to connect to one’s breathing…. V difficult for someone with severe dyskinesia disorder how will researchers address this?

Are there similar 'mindfulness' apps available already?

Headspace

Is there a similar app used for another condition like MS?

Not specifically addressed to pd sufferers

Will this be relevant for people already practising Mindfulness?

The Lincoln group was closed down recently which is such a shame. Couldn’t promotion be shared within the app of all the classes/groups within the UK?

will the App be possible to use if you live outside UK?

As a PwP in East Sussex, I've benefited greatly from a local mindfulness tutor, in reducing stress without drugs in a fine-tuned way. Your project sounds excellent!

Also concentration in advanced pd would make it difficult to access this app

I teach groups with PD and we work to still the mind which in turn has a better opportunity to relax the body. No need to sit or lie in a still posture. Also moving meditations xx

Can you use the app for episodes of freezing pwp are affected by the autopilot section of the brain not working and mindfulness strategies are very useful to overcome these episodes. am yoga therapist worked for 10 years with pwp including meditation. My husband is in the complex phase I am experienced meditator

My husband can’t attend my meditation/mindful group due to mobility, constant moving

Acupuncture can be an alternative therapy which is extremely useful for every part of the body. These can be accessed via a massage roll sitting in a chair.

Is this app different because it is a 'learning' app that adopts to a specific person?

Faith can have a big positive effect on me and wonder if this is being considered

For any younger people with Parkinson's interested in doing a mindfulness course there's a virtual course starting soon. Find out more here https://www.everydayspace.co.uk/parkinsons

Will the app be voice-activated as tremors make typing hard?

Do you have any worries about the success of the intervention, study and development of the app. How can we help?

Would it be helpful to encourage the newly diagnosed to start to su

Research Priority Exercise” - is this a recognised technique, or just a term you are using?

Thanks for a very interesting presentation, I have to go now, but I would be interested in taking part in the study, cheers Mo

Is ACT different to the Mindfulness based Stress Reduction Programme?

reflecting back on my husband journey through pd 17 years it would be helpful to develop the use of this app so that the stratigies suggested become a habit which would carry through to the advanced stage and help with cooping strategies and acceptance Understand that acceptance can be found and then lost agaoin when different symptoms kick in

I would be interested I would say I am working class

people may not have looked at their values before - how easy will it be to 'find' these following diagnosis

For more statistical effect size issues wonder if feedback from carers, partners can be somehow included in outcome to show effectiveness of impact.

What is the main objective of the app , and what its the main purpose of collecting the data

Please could the gentleman who spoke earlier about the PEMF device, clarify, which one is he using?

In what ways will the App be PD specific?

Thanks everyone for your comments, feedback and questions! If there are any I missed, please do email them to me on lnash@parkinsons.org.uk and I'll try my best to get them answered for you

Thank you I found the talk very interesting

Very interesting and helpful even before app available!

From Janine: For any younger people with Parkinson's interested in doing a mindfulness course there's a virtual course starting soon. Find out more here https://www.everydayspace.co.uk/parkinsons

Thank you. This was a fascinating talk on a very worthwhile area of study that will benefit PwP greatly (I believe!).