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Greater Glasgow Research Interest Group 'Meet the Researcher' with Dr Angeliki Bogosian - Shared screen with speaker view
William Brown
23:46
Good afternoon everyone
Dr John Sedgewick
23:47
Hello from Saudi Arabia - John & Gillian
Liz Nash
28:07
Welcome, everyone! Thank you for joining us today. Please do keep on mute throughout, and enter any questions here in the chat box
Liz Nash
30:08
If typing is difficult, you can also simply enter a '?' here in the chat, or raise your virtual hand, using the icon at the bottom of your screen, during the Q&A session. Enjoy the talk!
William Brown
32:04
Are you looking at Parkinson's dementia
martin wood
34:46
Can I ask, have any of the PD professionals felt a financial impact on their research funding due to COVID being a priority?
Paul Bennett
37:02
Has anyone used the android "Be" meditation app?
Isaac Alvarez
39:28
When the trials (testing )will start ?
martin wood
45:19
Is it expected that the app will provide immediate, short term benefits (eg use for five minutes & then feel a benefit for one hour), or a steady day on day slow improvement?
Anil Vaghmaria
50:54
When is the project starting.
Tariq Saleem
52:32
are the participants all based in Glasgow Scotland or do you want people in London too?
Jane Keene
54:47
This is a good idea in theory but mindfulness is inextricably linked to meditation which requires one to be still, to connect to one’s breathing…. V difficult for someone with severe dyskinesia disorder how will researchers address this?
Mo Lakshmanan
54:58
Are there similar 'mindfulness' apps available already?
Jane Keene
55:22
Headspace
Tariq Saleem
55:38
Is there a similar app used for another condition like MS?
Jane Keene
55:40
Not specifically addressed to pd sufferers
Susan Klink
56:24
Will this be relevant for people already practising Mindfulness?
Liz Clews
56:36
The Lincoln group was closed down recently which is such a shame. Couldn’t promotion be shared within the app of all the classes/groups within the UK?
Aase Wonsild
56:37
will the App be possible to use if you live outside UK?
Jonathan Gravestock
56:52
As a PwP in East Sussex, I've benefited greatly from a local mindfulness tutor, in reducing stress without drugs in a fine-tuned way. Your project sounds excellent!
Jane Keene
56:52
Also concentration in advanced pd would make it difficult to access this app
Gillian Ward
56:53
I teach groups with PD and we work to still the mind which in turn has a better opportunity to relax the body. No need to sit or lie in a still posture. Also moving meditations xx
julia
58:13
Can you use the app for episodes of freezing pwp are affected by the autopilot section of the brain not working and mindfulness strategies are very useful to overcome these episodes. am yoga therapist worked for 10 years with pwp including meditation. My husband is in the complex phase I am experienced meditator
Jane Keene
58:40
My husband can’t attend my meditation/mindful group due to mobility, constant moving
Liz Clews
59:13
Acupuncture can be an alternative therapy which is extremely useful for every part of the body. These can be accessed via a massage roll sitting in a chair.
Mo Lakshmanan
59:41
Is this app different because it is a 'learning' app that adopts to a specific person?
roger hampton
01:00:37
Faith can have a big positive effect on me and wonder if this is being considered
Janine Starling
01:01:44
For any younger people with Parkinson's interested in doing a mindfulness course there's a virtual course starting soon. Find out more here https://www.everydayspace.co.uk/parkinsons
Jonathan Gravestock
01:01:50
Will the app be voice-activated as tremors make typing hard?
Tariq Saleem
01:02:58
Do you have any worries about the success of the intervention, study and development of the app. How can we help?
julia
01:02:59
Would it be helpful to encourage the newly diagnosed to start to su
Ken Howard
01:04:40
Research Priority Exercise” - is this a recognised technique, or just a term you are using?
Mo Lakshmanan
01:06:14
Thanks for a very interesting presentation, I have to go now, but I would be interested in taking part in the study, cheers Mo
Susan Klink
01:06:19
Is ACT different to the Mindfulness based Stress Reduction Programme?
julia
01:06:38
reflecting back on my husband journey through pd 17 years it would be helpful to develop the use of this app so that the stratigies suggested become a habit which would carry through to the advanced stage and help with cooping strategies and acceptance Understand that acceptance can be found and then lost agaoin when different symptoms kick in
William Brown
01:07:19
I would be interested I would say I am working class
PAM GODDARD
01:07:24
people may not have looked at their values before - how easy will it be to 'find' these following diagnosis
Tariq Saleem
01:08:18
For more statistical effect size issues wonder if feedback from carers, partners can be somehow included in outcome to show effectiveness of impact.
Isaac Alvarez
01:08:28
What is the main objective of the app , and what its the main purpose of collecting the data
Claire Wallington
01:13:28
Please could the gentleman who spoke earlier about the PEMF device, clarify, which one is he using?
Martin Cox
01:13:34
In what ways will the App be PD specific?
Liz Nash
01:16:11
Thanks everyone for your comments, feedback and questions! If there are any I missed, please do email them to me on lnash@parkinsons.org.uk and I'll try my best to get them answered for you
William Brown
01:16:24
Thank you I found the talk very interesting
Susan Sheridan
01:17:25
Very interesting and helpful even before app available!
Liz Nash
01:18:16
From Janine: For any younger people with Parkinson's interested in doing a mindfulness course there's a virtual course starting soon. Find out more here https://www.everydayspace.co.uk/parkinsons
Susan Klink
01:18:21
Thank you. This was a fascinating talk on a very worthwhile area of study that will benefit PwP greatly (I believe!).