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Wales Research Interest Group online research event 29 November 2021 - Shared screen with speaker view
Liz Nash
18:57
Good morning everyone, welcome and thank you for joining us!
Liz Nash
21:44
Good morning everyone, welcome and thank you for joining us at this Wales Research Interest Group event! Please keep your microphones on mute, and enter any questions for our speakers here in the chat box. If typing is difficult for you, please enter a '?' or 'raise your virtual hand' using the icon below.
Liz Nash
38:09
Here's a link to more info on PD Frontline, as mentioned: https://www.parkinsons.org.uk/research/pd-frontline-identifying-genes-people-parkinsons
KEITH WOOLLEY
38:41
Simon Hi. Does the international programme include covering Parkinson's Plus syndromes, and if not would it be possible to cover these in future? cheers Keith.
Liz Nash
41:10
Please enter any questions for our speakers here in the chat box. If typing is difficult for you, please enter a '?' or 'raise your virtual hand' using the icon below.
Maria Carmody
42:21
were there any side effects recorded with the Deferiprone?
Robert Paterson
50:39
Given all the research being done when will a new treatment be available to PwP?
Isobel Thomson
52:00
did the Ambroxol also improve the mucus problem?
Wendy Noble
52:22
how robust was the exenatide phase 2 in your opinion. did it eliminate all bias ?
Wendy Noble
55:37
was it robust though ?
Liz Nash
58:34
Thanks everyone for your questions! If you have any further, please email research@parkinsons.org.uk
Jane Keene
59:53
I’m glad I wasn’t the only one who failed chemistry O level!!
Simon Stott
01:00:50
Hi Isobel, to be honest, I am not sure. It is a very good question. I will ask the investigators
Wendy Noble
01:05:55
thanks - I read the phase 2 exenatide trial and concluded it was randomised , controlled, double blinded and the results were adjusted at baseline - so I took the results as being so so so hopeful and unbiased. that was my take . I thought why wait with covid delaying recruitment.... I don’t have TIME to wait for this disease to get worse......
Anne Williams
01:05:57
Would I have to come off my Sinemet to take part in a clinical trial? As I'm stable with exercise ++ and half dose Sinemet I'm concerned about upsetting things
Simon Stott
01:13:01
Hi Wendy, in my opinion, the results of the exenatide Phase II study were encouraging - certainly worthy of more investigation. After a long period of negative results, it was nice to finally see a positive clinical finding. If the Phase III study gives a positive result, then we may be able to start looking at potential combination therapies. Fingers crossed.
Diane & Roger Morley-Jones
01:13:54
Well done Ken Diane & Rpger
Elaine Evans
01:14:17
WHAT HOSPITAL DID YOU ATTEND?
Wendy Noble
01:14:38
hi ken thank you for the insight .....have you lost any weight ?
Janis Tunaley
01:15:20
How about Madopar?
Liz Nash
01:30:04
Here's a link to Rubina's study and questionnaire, if you'd like to take part! https://www.parkinsons.org.uk/research/testing-new-questionnaire-measure-how-much-persons-health-condition-affects-quality-life
Liz Nash
01:31:59
If you have any questions for Rubina, please enter them here in the chat box :)
Liz Nash
01:35:45
Here's a link to Rubina's study and questionnaire, if you'd like to take part! https://www.parkinsons.org.uk/research/testing-new-questionnaire-measure-how-much-persons-health-condition-affects-quality-life
Wendy Noble
01:37:14
will the results be used for development of new support services ?
Liz Nash
01:37:34
At the end of the event, please take a moment to complete our feedback poll, on screen in a moment
Liz Nash
01:37:49
Thanks for joining us today!
Ana Palazon
01:39:32
Thank you for a very interesting set of presentations